14
Mar

The Role of Metabotropic Glutamate Receptors in Migraine

Principal investigator: Maggie Waung, MD University of California, San Francisco Update: The main hypothesis of this project is that the metabotropic glutamate receptors are involved in trigeminovascular pain processing. This study is running under budget but, due to change in animal model, it has been extended for an additional year (2017).

27
Feb

A Migraine Relief Diet

Foreword for The Migraine Relief Diet is written by Frederick Godley, III, MD, FACS, President of the Association of Migraine Disorders and Michael Teixido, MD, Vice President of the Association of Migraine Disorders (excerpted from “The Migraine Relief Diet” by Tara Spencer, (c) Callisto Media/Althea Press), available here at Amazon.com in both softcover and kindle editions) Many people aren’t aware of how common

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20
Feb

Headache on the Hill (HOH) 2016

This is an annual event, organized by the nonprofit Alliance for Headache Disorders Advocacy (AHDA), to advocate on behalf of Americans with disabling headache disorders. This is primarily a grassroots advocacy for increased funding of headache research. Its founder and thought-leader is Robert E. Shapiro, MD, PhD and its president is William B. Young, MD. AHDA is supported by a confederation

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24
Oct

Annual AMD Scientific and Educational Board Meeting

Our first annual scientific and educational advisory board meeting, on October 23rd, was full of invigorating discussion and a wealth of great ideas. It underscores how essential the word “collaborate” is within the goals of our Mission. I am very grateful, for every member shared their time and expertise with a generosity of spirit in the common goal: assisting patients

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20
Oct

AAO-HNSF OTO-Expo 2015

American Academy of Otolaryngology Head and Neck Surgery Foundation Dallas, Texas September 26-30, 2015 This is an international meeting of otolaryngologists with a choice of major guest lecturers, instructional courses, miniseminars, oral presentations, committee meetings, posters and a large expo.  15,000 participants. Relevance to AMD: opportunity to have a booth in the expo to distribute information about migraine disorders in

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20
Oct

The 9th Annual Pain & Migraine Therapeutics Summit

Washington, DC    September 23-24, 2015 This is a two-day conference with presentations of the latest research and pharmaceutical findings regarding pain management and migraine disease. Participants: 80 and include representatives from CRO’s (Clinical Research Organizations), pharmaceutical companies and basic researchers – no clinicians Range of topics New animal and human study models New clinical measurements of pain New directions in

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10
Sep

Objectively measured physical activity in obese women with and without migraine

Principal Investigator: Dr. Dale Bond Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University, The Miriam Hospital/Weight Control and Diabetes Research Center, USA Clinical Trial:  to cross-sectionally compare objectively measured physical activity (PA) levels and their association with migraine characteristics in obese women with and without migraine. CONCLUSIONS: Obese women with migraine spent nearly 1.5 hours/day less

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11
Aug

A New Treatment Development – The Sphenoplatine Ganglion Block

Dolor Technologies has developed for the U.S. its patented, advanced drug delivery catheter, SphenoCath™. SphenoCath is a single-use, disposable catheter that delivers lidocaine via the nasal passages to a hard-to-reach ganglion (SPG) located at the back of the nose without use of painful needles, sprays, swabs or sedation, which is a real advantage. When used as prescribed, SpenoCath saturates and prolongs the medication

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11
Jul

CGRP Antibodies: A Potential Game Changer in Migraine Prevention

“Here, for the first time ever, is a specific treatment for migraine prevention,” “It’s an enormous step forward.” – Peter Goadsby, MD, Chief of the University of California, San Francisco Headache Center, and Chairman of the American Headache Society Finally, after decades of waiting real hope is on the horizon in the form of a small molecule called a Calcitonin

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27
Jun

Migraine Awareness Month – A Time to Rally for Research and Awareness

With June being National Migraine Awareness Month, I felt compelled to share critical information about migraine disease, and to encourage migraine sufferers – also known as “migraineurs” – to demand more attention, empathy and financial support for their illness. Migraineurs should band together and ask family members, friends and co-workers to join them in rallying for change. Not only do

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27
Jun

Migraines: The Individual Financial Toll

Healthcare is expensive. We all know this. Even under the best of circumstances, a generally healthy person, can dedicate a large portion of income in service of insurance premiums, deductibles, co-insurance, co-pays, and medications to name a few “usual ” expenses. The stakes, and expenses, get much higher when you introduce a chronic disabling illness, like migraine. We can start

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24
Jun

Everything You Wanted to Know About Sex and Migraines (But Were Afraid to Ask!)

36 Million Migraineurs in the US alone may think they have a built in reason for avoiding sexual relations, but it’s not always a headache. A study from the University of Munster in Germany, http://www.ncbi.nlm.nih.gov/pubmed/23430983 with a large sample (about 400 people ) uncovered some interesting results. They surveyed both migraineurs and those that suffered cluster headaches. Our Teutonic Colleagues distributed a

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22
Jun

In Search of the “Magic Bullet”

The past year shapes up to be a particularly productive one in terms of research, and in some cases product roll-out, for potential relief from migraines and related disorders. Oral triptans have been the first line of treatment for migraines for the past several decades, with precious little to look forward to, until recently. Why the new interest from Big

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22
Jun

Migraine Disorders and Relationships

How is it possible that such a devastating illness in all its expressions could not have far-reaching, negative effects in all relationship areas of a migraineurs life? It’s not, of course. Only recently have we begun to see research that looks at subjects like family burden and the disruption chronic migraine causes in the lives of sufferers. Very few of

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26
Feb

First Migraine Symposium at Brown a Success!

The inaugural Migraine Disorders Symposium was held on Tuesday, February 17 at the Brown Institute for Brain Science. Frederick Godley, MD provided introductory remarks about the new partnership between the Brown research center and the Association of Migraine Disorders. The featured speaker Daniela Pietrobon, PhD of Padova, Italy, an expert on calcium channel physiology was unable to attend due to the blizzard

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11
Jul

Multi-disciplinary Collaboration in Migraine Research: A Call to Arms

The Fable of the 7 Blind Men and the Elephant (slightly revised) “Hey, the elephant is a pillar,” said the first man who touched his leg. “Oh, no! It is like a rope,” said the second man who touched the tail. “Oh, no! It is like a thick branch of a tree,” said the third man who touched the trunk of

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6
Jul

The Stigma of Migraine

Stigma (From the Oxford English Dictionary) NOUN A mark of disgrace associated with a particular circumstance, quality, or person When we speak of the stigma Migraine sufferers (migraineurs) experience we are really talking about an ingrained set of cultural attitudes that strongly imply that this crippling, neurological disease is somehow something that can be discounted, that it is a “lifestyle

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23
Jun

Migraine Sufferers at Risk for Brain Injury?

This question has haunted migraineurs, clinicians, and researchers for decades: how can such an excruciatingly painful condition not result in some damage to the central nervous system? It appears that some research bolstered by technological advances (MRI, etc.) is shedding some light on this question. In this blog I’ll attempt to condense some of the research and make some sense

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17
Jun

The Cost-effective Potential of Migraine Research and Treatment

The lack of funding, both public and private, in the area of migraine disorders is truly a puzzle to me. Perhaps it is because migraine disorders lack the impact of a “butcher’s bill” that other potentially lethal diseases like HIV, Cancer, Lymphoma, and Hepatitis C lay claim to. Or, as suggested in last week’s blog on stigma, ingrained attitudes on

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1
Jan

Give Local America, May 6, 2014

We are excited to announce that we are participating in an 24-hour online giving event for charities called Give Local America on May 6, 2014. On that day from 12:00 a.m. to 11:59:59 pm, supporters can donate to our organization through our Give Local donation page. We are listed among the other participating charities on the Give Local Everywhere website.

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5
Dec

Not Just in Your Head – An Art, Video and Writing Contest

Here’s a chance for Migraine Disorder Sufferers to get really creative! We’re holding a contest, with prizes awarded in each category, in order to raise public awareness of non-traditional migraine symptoms (Migraine Disorders) and raise money for further research. We are looking for Art, Video and Writing projects that capture the experience of a non-traditional migraine symptom. You might view a

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