Have you felt let down by the ER? Here’s a bit more detail on how I feel that the ER is missing the boat for me, as a migraine sufferer.
Professor Lyn Griffiths Executive Director, Institute of Health and Biomedical Innovation, Queensland University of Technology, Australia Conclusion: Dr. Griffiths has tested a quicker, more cost-effective genetic identification methodology, called Next Generation Sequencing(NGS). The utilization of the NGS methodology has proven successful in identifying individuals with the FHM mutation, and has proven to be 100% consistent with the older (Sanger) methodology. The
I glanced at the unfamiliar things on my bed: a vaporizer, a grinder, a spoon, and two containers of marijuana. How did I end up here?
Cognitive strategies to enhance headache sufferers’ ability to engage in behaviors that enhance their self-management of headaches.
Since CGRP Antibodies cannot be found in anyone’s formulary yet, we’ll have to abide by the time honored trigger avoidance strategies during this holiday season. Most agree the holiday season is meant to be a exceptionally joyful time of year. But a migraine can ruin the fun and celebration, and suck out the “joy” for sure. Following are tips on
I am going to assume that most of you taking the time to read this newsletter are aware of the four big Pharma companies competing to be the first to offer a drug that may lessen, or even prevent, migraines for the more than 36 million Americans affected by this debilitating neurological illness. A quick review: Alder Biopharmaceuticals, Eli Lilly, Amgen,
The subject of this month’s newsletter began with a conversation between myself and a Human Resources Specialist around coping with an employee’s pneumonia, her chronic absences, and whether or not to place her on Intermittent FMLA. During this conversation the HR Specialist likened someone with migraine, having to take large amounts of time off, to our present case of extraordinary
Genetic investigations continue to make news in the world of migraine research. As you may recall, last year (2016) our newsletter reported a number of major genetic advances. In probably one of the best known to date, originally published in Nature Genetics, an international group of researchers isolated 38 genetic variants implicated in migraine, 28 of them previously unknown. This
First, heartfelt congratulations to everyone who participated in the wealth of activities celebrating Migraine and Headache Awareness Month 2017 (MHAM) Thanks to all who worked on and participated in the Shades of Migraine and World Migraine Solidarity Day campaign. If you did not hear about this effort, initiated by the Association of Migraine Disorders, visit www.ShadesForMigraine.org to learn about it. The campaign was
This February will witness the eleventh anniversary of “Headache on the Hill” (HOH), the highly acclaimed annual advocacy event, sponsored by the Alliance for Headache Disorders Advocacy (AHDA), designed to draw attention to the need for increased funding for research into migraine disease, pain and other headache disorders. In 2017, AHDA advocated to include NIH pain research as a component
With all of the anticipation of CGRP blockers, the sober news is that they will not be a savior for all migraine sufferers. First, like all pharmaceutical agents, they will not work for all migraine sufferers. Secondly, CGRP blockers are expensive (the current guess is that they will cost roughly $1000 a month). That is a big bill for insurance
You may already know that migraine disease is more common than Alzheimer’s disease, Parkinson’s disease, epilepsy and multiple sclerosis combined. And despite that fact, it receives a small fraction of the available neuroscience research funding. Not surprisingly there are a very small number of neuroscience researchers who decide to take on migraine as a project, or devote a laboratory or professional
June 2017 marks National Migraine Awareness Month (#MHAM). This month long series of events promotes education, collaboration and general consciousness enhancing regarding the neurological affliction, migraine disease. Enormous strides have been made over the last several years. Possibly 2017 will be the most significant year to date, since the advent of triptans in 1991, in the history of migraine
This February witnessed the tenth anniversary of “Headache on the Hill”, the highly successful annual advocacy event, sponsored by the Alliance for Headache Disorders Advocacy (AHDA), designed to draw attention to the need for increased funding for migraines and related headache disorders. Apart from being the tenth consecutive advocacy year, this year was also remarkable for another reason: the passage
“Epilepsy is more than a seizure. It’s a life changing and threatening condition affecting the person and their families terribly.” (Julie Clark, Scotland, UK, 2017) We can easily substitute migraine and headache into that quote . The result would be a commonly acknowledged expression assigned to migraine disease: Migraine is more than a headache… which is also life changing and affects people’s lives terribly. Coincidence? Probably not. It brings us to
The Vestibular Migraine Mystery The medical community is just now waking up to the high prevalence of vestibular migraine (VM). Current estimates vary but VM appears to affect up to 1- 3% of the general population. 10% of all migraineurs may suffer from VM. And more than 50% of people complaining of dizziness have VM. We are talking about
The holiday season is already hard upon us. For some it is a time for celebration-parties, eating and drinking, enjoying time with family, and all too often, stress, a recognized migraine trigger. Remember, there exists both good stress and bad stress, but in the end it is all stress. For the migraineur this stress can be a prescription for a
The last few years has seen a groundswell of promising research and innovative medications and devices designed to prevent or abort a migraine episode. The Association of Migraine Disorders reports on what we believe to be credible research and treatments that will withstand rigorous testing. When AMD refers to “novel approaches” we do not mean two minute YouTube guided imagery
A breakthrough year indeed! With CGRP antibodies leading the charge. It has been over a year since we reported on the great promise of CGRP antibodies and the immense promise they hold for a true, scientifically validated, migraine prevention medication. Our Twitter postings, for those that follow us, have kept pace with the developments, but it seems an opportune
It seems nowadays there is a computer app to accommodate nearly every need. The migraine world is no exception. In reviewing the various migraine app products two major and separate classes emerge. The first includes those applications allowing a migraineur to both record and interpret critical data. This data could include dietary information, sleep patterns, medications, stress levels, date/time and more.
“Merriam-Webster” definition of disability: “a physical, mental, cognitive, or developmental condition that impairs, interferes with, or limits a person’s ability to engage in certain tasks or actions or participate in typical daily activities and interactions” Controversy surrounds the question of whether or not migraine disease, in any or all of its manifestations, rises to the level of a disability.