What Is A Registry?
A registry is a database that connects patient information to a variety of stakeholders striving to improve the state of care for a particular disease.
How Does It Work?
AMD has been working with patients, researchers, and clinicians across the US to develop questionnaires related to their experiences living with vestibular, auditory and sinus symptoms. This information is then used to learn more about care across the US and to answer important questions that will change the future of patient care.
Why Should I Participate?
Your involvement is critical in helping AMD improve care for people living with migraine, vestibular, and sinus symptoms today and in future generations. You will be informed of new research and have the opportunity to be involved with leading studies across the US. You can also access reports on your symptoms and health to share with your healthcare team.
How Is The Information Used?
Data is pooled in a computer database with information obtained from other patients across the country. Access to collected information is strictly controlled through an approval process to protect patient privacy.
Can I Participate?
People in the USA living with:
- Sinus pain
- Nasal blockage
- Facial pain
- Facial pressure
- Headache
- Migraine
- Dizziness
- Balance difficulties
- Aura
- Visual disturbance
- Difficulty hearing
- Sensitivity to sound
- Tinnitus
are eligible to participate.
Enrollment is voluntary, confidential, and free of charge. You can withdraw at any time.
We also need people who do not have any symptoms to participate as well!
Sign up using the form below to get notifications about the registry launch!