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What Is A Registry?

A registry is a research and advocacy infrastructure tool that connects patients and their data with a variety of stakeholders striving to improve the state of care in a disease.

How Does It Work?

AMD has been working with patients, researchers, and clinicians across the US to develop questionnaires related to symptoms, treatments, and your experience living with the disease. This information is then used to learn more about care across the US and to answer important questions that will change the future of patient care.

Why Should I Participate?

Your involvement is critical in helping AMD improve care for migraine, vestibular, and sinus disease patients today and in future generations. You will be informed of new research and have the opportunity to be involved with leading studies across the US. You can also access reports on your symptoms and health to share with your healthcare team.

How Is The Information Used?

Data is pooled in a computer database with information obtained from other patients across the country. Access to collected information is strictly controlled through an approval process to protect patient privacy.

Can I Participate?

Americans living with:

  • Sinus pain
  • Nasal blockage
  • Facial pain
  • Facial pressure
  • Headache
  • Migraine
  • Dizziness
  • Balance difficulties
  • Aura
  • Visual disturbance
  • Difficulty hearing
  • Sensitivity to sound
  • Tinnitus

are eligible to participate.

Enrollment is voluntary, confidential, and free of charge. You can withdraw at any time.

We also need people who do not have any symptoms to participate as well!

Sign up using the form below to get notifications about the registry launch!