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Living with Migraine

4
Jun

It’s a Bird, It’s a Plane, It’s a Super-Responder: A Story of Life After Aimovig

It’s a Bird, It’s a Plane, It’s a Super-Responder: A Story of Life After Aimovig  I sat staring at my phone, anxiously hitting the refresh button. The FDA was slated to announce their approval of Amgen’s new migraine prevention drug sometime today and the sun was beginning to set. As darkness began to fall, my heart began to beat faster.

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8
Apr

Pregnancy and Migraine Medications

When we first become moms we face all sorts of new challenges and changes. Those of us managing migraines have an extra challenge.

22
Feb

Breastfeeding and Migraine

When we first become moms we face all sorts of new challenges and changes. Those of us managing migraines have an extra challenge.

28
Jan

That’s What This Is

When I got to college it seemed as if everyone around me was anxious. I was convinced that everyone was being dramatic. Then one day it hit.

7
Jan

Anti-Migraine Resolutions

For many of us, fewer migraines is a hopeful New Year’s Resolution. Here are some strategies to help you overcome your migraine disease.

11
Dec

Migraine Gift Guide

We’ve asked people with migraine what gifts they’d love to receive this holiday, plus the gifts you should avoid at all costs. Here’s what they said.

29
Sep

Migraine vs. Career

Are you finding yourself struggling with the idea of your migraine disorder vs. your career? It has crushed me to. Here’s how I’ve coped.

27
Sep

Feeling hopeful about Aimovig

If you have not yet heard of Aimovig, it’s a new preventative migraine treatment option for adults. I am trying it, and feeling hopeful.

4
Sep

Thoughts on the ER

Have you felt let down by the ER? Here’s a bit more detail on how I feel that the ER is missing the boat for me, as a migraine sufferer.

18
May

Use of Next Generation Sequencing Technology to identify novel hemiplegic migraine

Professor Lyn Griffiths Executive Director, Institute of Health and Biomedical Innovation, Queensland University of Technology, Australia Conclusion: Dr. Griffiths has tested a quicker, more cost-effective genetic identification methodology, called Next Generation Sequencing(NGS). The utilization of the NGS methodology has proven successful in identifying individuals with the FHM mutation, and has proven to be 100% consistent with the older (Sanger) methodology. The

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2
May

Medical Marijuana and Migraine

I glanced at the unfamiliar things on my bed: a vaporizer, a grinder, a spoon, and two containers of marijuana. How did I end up here?

30
Mar

Why Try CCBT for Migraine?

Cognitive strategies to enhance headache sufferers’ ability to engage in behaviors that enhance their self-management of headaches.

22
Mar

Holiday Migraine Avoidance Tips

Since CGRP Antibodies cannot be found in anyone’s formulary yet, we’ll have to abide by the time honored trigger avoidance strategies during this holiday season.  Most agree the holiday season is meant to be a exceptionally joyful time of year. But a migraine can ruin the fun and celebration, and suck out the “joy”  for sure. Following are tips on

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21
Mar

What Price for Migraine Relief?

I am going to assume that most of you taking the time to read this newsletter are aware of the four big Pharma companies competing to be the first to offer a drug that may lessen, or even prevent, migraines for the more than 36 million Americans affected by this debilitating neurological illness. A quick review: Alder Biopharmaceuticals, Eli Lilly, Amgen,

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21
Mar

Intermittent FMLA: Protection for the Employed Chronic Migraine Sufferer

The subject of this month’s newsletter began with a conversation between myself and a Human Resources Specialist around coping with an employee’s pneumonia, her chronic absences, and whether or not to place her on Intermittent FMLA.  During this conversation the HR Specialist likened someone with migraine, having to take large amounts of time off, to our present case of extraordinary

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21
Mar

Genetic Research: Moving Towards a Root Cause

Genetic investigations continue to make news in the world of migraine research.  As you may recall, last year (2016) our newsletter reported a number of major genetic advances.  In probably one of the best known to date, originally published in Nature Genetics, an international group of researchers isolated 38 genetic variants implicated in migraine, 28 of them previously unknown. This

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21
Mar

Stigma, Revisited 2017

First, heartfelt congratulations to everyone who participated in the wealth of activities celebrating Migraine and Headache Awareness Month 2017 (MHAM) Thanks to all who worked on and participated in the Shades of Migraine and World Migraine Solidarity Day campaign. If you did not hear about this effort, initiated by the Association of Migraine Disorders, visit www.ShadesForMigraine.org to learn about it. The campaign was

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21
Mar

Headache on the Hill 2018

This February will witness the eleventh anniversary of “Headache on the Hill” (HOH), the highly acclaimed annual advocacy event, sponsored by the Alliance for Headache Disorders Advocacy (AHDA), designed to draw attention to the need for increased funding for research into migraine disease, pain and other headache disorders.   In 2017, AHDA advocated to include NIH pain research as a component

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21
Mar

Current Neuromodulation Devices

With all of the anticipation of CGRP blockers, the sober news is that they will not be a savior for all migraine sufferers. First, like all pharmaceutical agents, they will not work for all migraine sufferers. Secondly, CGRP blockers are expensive (the current guess is that they will cost roughly $1000 a month). That is a big bill for insurance

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20
Mar

Migraine Solidarity Day – June 21

You may already know that migraine disease is more common than Alzheimer’s disease, Parkinson’s disease, epilepsy and multiple sclerosis combined.  And despite that fact, it receives a small fraction of the available neuroscience research funding. Not  surprisingly there are a very small number of neuroscience researchers who decide to take on migraine as a project, or devote a laboratory or professional

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20
Mar

Migraine Awareness Month 2017

June 2017 marks National Migraine Awareness Month (#MHAM). This month long series of events promotes education, collaboration and general consciousness enhancing regarding the neurological affliction, migraine disease.   Enormous strides have been made over the last several years. Possibly 2017 will be the most significant year to date, since the advent of triptans in 1991, in the history of migraine

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